Two months ago, on Wednesday, August 14th, I went through with a termination of pregnancy due to a poorly developed baby with hydrops fetalis. I'm not going to go over all the emotional turmoil of it, but I'll say this.
At first, I was devastated and depressed, but seeing babies and pregnant women helped me feel (slightly) better. I wished that, hopefully, at least they would be having healthy babies - at least one of us should, anyway. But as the weeks went by, I realized how difficult it was getting.
After 6-7 months of trying, when I got pregnant in June, I had gotten lucky - four friends and I were pregnant all at the same time! My sister, my friend RS, my coworker O, and my friend Cole! It was a party and great fun thinking of how our bumps would all get bigger at the same time and how we could compare pictures as we go through milestones of our little ones.
But then we hit that bump and lost ours. I became a ghost, a shell of a mom and wife for a month. I almost got fired from my job because of it. And to add insult to injury, I realized that everyone's bumps were getting bigger and cuter. Every single day, I saw my coworker's belly get bigger and I imagined my own baby the same size. My coworker can feel the movement of her baby, and I could imagine feeling that again. My friend RS is going for her anatomy scan soon and I would have as well. Only I'm not. My stomach is still flat and my uterus empty.
I've discovered it's not so easy to watch others get pregnant and stay pregnant when that's all you wanted, and what you had. Their babies will be born around the time mine was originally due. And I'm sure that week will be a tough one for me (the first week of February 2020). Should I do something special to commemorate him/her? I don't know. Maybe I'll take it one step at a time and feel and identify the emotions.
Some of them right now are jealousy. Hope. Unfairness. Depression. A little anger.
And then I think that if/when I do get pregnant again, I'm going to have anxiety about it. Oh yea. I used to think that pregnancy was a super chill, exciting time where you got to watch your fetus grow into a baby with little waving arms and bouncing legs. Though I always knew the risks, my free spirit regarding pregnancy has officially left - it died with my fourth baby. Nope. If/when I get pregnant again, I know what can go wrong, more than I ever had before (and I consider myself pretty well educated). And, of course, I'm "geriatric" now so that changes other numbers that we have to take into consideration.
But in the meantime, we keep trying and preparing for all the High Holidays. And if we're blessed this year, we're blessed. The odd thinking is that if/when I get pregnant, then I'd "know" (I laugh at that verb) why #4 didn't get to stay earthbound. Because we needed this next particular soul to be the one to join us.
I feel like going through this entire thing leads to all kinds of odd feelings. And they're all valid, odd feelings. So I guess I'll take one day at a time, two weeks at a time. Work on increasing my meditation, my breathing, more practice on self-healing and acceptance.
Conveniently perfect timing as we run into Rosh Hashanah and Yom Kippur.
On that note, may we all be sealed in the Book of Life for the coming year. May we be blessed with the things we need and the babies we desire. May we have family, success, and health, and nothing but good news and healthy children.
And on a less spiritual, but no less meaningful note - let's make 5780 our bitch. Light 'er up.
Showing posts with label termination of pregnancy. Show all posts
Showing posts with label termination of pregnancy. Show all posts
Monday, October 7, 2019
Monday, September 2, 2019
Trust, lots of trust, and a little anxiety on the side.
Thursday, August 29.
I woke this morning with a lot of anxiety.
A year ago, when I was re-diagnosed with depression, I was "lucky" enough (haha) to also get its accompanying 'kissing cousin,' a.k.a. anxiety. I had never really had anxiety before, but I have plenty of friends with anxiety disorders. I could always sympathize, but never quite empathize until now.
Over the past year, I've had good reason to be anxious about things, but, see, the thing about anxiety is that it doesn't always make sense. I remember this past Spring my husband telling me that he finally bought me and my baby daughter the tickets to America we'd been talking about so I could go see my dad; I literally had low-grade anxiety the entire day before bawling and freaking out once I walked in the door. He didn't quite understand and I had to explain. It wasn't that I didn't want to go, I said between tears. It's just ... big. A lot.
Time has passed and I've had a rough August. A really rough "f*ck you" kind of August. We moved, had all three kids off school/gan, commemorated my mom's English date of death, learned our thirteen-week old fetus wasn't healthy and had to make the choice whether to terminate the pregnancy, had to maneuver the hospital system to finally get it terminated the next week, studied and took two legal exams to become licensed in Israel, celebrate what would have been my mom's 79th birthday, and then get a scare that my blood clots (from ten years ago) came back.
To add to all the physical and emotional drama that I endured this month, there was also an intense amount of job drama as well. I'm pretty sure it'll resolve this week, but that's a lot of additional anxiety to heap onto my already formidable depression that I'm carrying on my shoulders.
In my attempts to resolve this job drama, I had to speak with my boss and share some personal information from this past horrendous month of August. She was sympathetic but told me that I need to trust a little more.
While processing my experiences this month, I had some (very brilliant) friends and family check in and share with me what they believed were insights. They were legitimate. Both involved trust.
My husband, while I was explaining my feelings and what was happening around me, said simply, "I guess Talya needs to learn trust."
In the span of three days, four separate people told me that I needed more trust.
But, in the past, when your boss fires you the week you're sitting Shiva for your mom, you've had your best friend suddenly accuse you of stealing her $15,000 engagement ring and file a police report against you for said accused felony (and never apologize once the ring was found), you've had boyfriends cheat on you, you've had family (temporarily) turn on you, and most recently, your body fail you, how do you regain that trust in anything? In others, in your workplace, in your body, in life, in G-d?
I can't simply "unexperience" this crap, I can't "unsee" or "unfeel" any of it.
But here's the food for thought that was provided to me - do with it what you will:
The opposite of anxiety is not tranquility. Nor is it peace, clarity, calm, or serenity.
The opposite of anxiety is trust.
When we are anxious, we are not trusting in ourselves, in G-d (if you believe), in others, or in things to pass.
In Hebrew, "worry" is "דאגה"
It has four out of five of the first letters of the Hebrew alphabet. The missing letter is "ב."
When we worry, we're missing בטחון - the trust (the security).
So I'm going to consciously take a leap and make an effort to trust again. Myself, others, and G-d ... How the hell do I do that? I guess by taking one step at a time: accepting emotions, meditation, visualizations, exercising/sleeping properly ...
לאט לאט.
I woke this morning with a lot of anxiety.
A year ago, when I was re-diagnosed with depression, I was "lucky" enough (haha) to also get its accompanying 'kissing cousin,' a.k.a. anxiety. I had never really had anxiety before, but I have plenty of friends with anxiety disorders. I could always sympathize, but never quite empathize until now.
Over the past year, I've had good reason to be anxious about things, but, see, the thing about anxiety is that it doesn't always make sense. I remember this past Spring my husband telling me that he finally bought me and my baby daughter the tickets to America we'd been talking about so I could go see my dad; I literally had low-grade anxiety the entire day before bawling and freaking out once I walked in the door. He didn't quite understand and I had to explain. It wasn't that I didn't want to go, I said between tears. It's just ... big. A lot.
Time has passed and I've had a rough August. A really rough "f*ck you" kind of August. We moved, had all three kids off school/gan, commemorated my mom's English date of death, learned our thirteen-week old fetus wasn't healthy and had to make the choice whether to terminate the pregnancy, had to maneuver the hospital system to finally get it terminated the next week, studied and took two legal exams to become licensed in Israel, celebrate what would have been my mom's 79th birthday, and then get a scare that my blood clots (from ten years ago) came back.
To add to all the physical and emotional drama that I endured this month, there was also an intense amount of job drama as well. I'm pretty sure it'll resolve this week, but that's a lot of additional anxiety to heap onto my already formidable depression that I'm carrying on my shoulders.
In my attempts to resolve this job drama, I had to speak with my boss and share some personal information from this past horrendous month of August. She was sympathetic but told me that I need to trust a little more.
While processing my experiences this month, I had some (very brilliant) friends and family check in and share with me what they believed were insights. They were legitimate. Both involved trust.
My husband, while I was explaining my feelings and what was happening around me, said simply, "I guess Talya needs to learn trust."
In the span of three days, four separate people told me that I needed more trust.
But, in the past, when your boss fires you the week you're sitting Shiva for your mom, you've had your best friend suddenly accuse you of stealing her $15,000 engagement ring and file a police report against you for said accused felony (and never apologize once the ring was found), you've had boyfriends cheat on you, you've had family (temporarily) turn on you, and most recently, your body fail you, how do you regain that trust in anything? In others, in your workplace, in your body, in life, in G-d?
I can't simply "unexperience" this crap, I can't "unsee" or "unfeel" any of it.
But here's the food for thought that was provided to me - do with it what you will:
The opposite of anxiety is not tranquility. Nor is it peace, clarity, calm, or serenity.
The opposite of anxiety is trust.
When we are anxious, we are not trusting in ourselves, in G-d (if you believe), in others, or in things to pass.
In Hebrew, "worry" is "דאגה"
It has four out of five of the first letters of the Hebrew alphabet. The missing letter is "ב."
When we worry, we're missing בטחון - the trust (the security).
So I'm going to consciously take a leap and make an effort to trust again. Myself, others, and G-d ... How the hell do I do that? I guess by taking one step at a time: accepting emotions, meditation, visualizations, exercising/sleeping properly ...
לאט לאט.
Thursday, August 22, 2019
Perfect Soul, Imperfect Baby: That Day and Beyond
Part VI: Thursday, August 22.
That Day and the Emotional Aftermath.
On Wednesday the 14th (an inauspicious day in my family), my husband and I woke up too early (not really, I slept through the first alarm at 5:30am) and snuck out to drive to Assuta in Tel Aviv by 7am. No one was awake in our house, not my husband's brother, not the baby, not the boys. My sister-in-law had also slept over so she could get a ride into TLV, but she was very quiet as well. What was there really to say?
We drove in, throwing small talk occasionally at each other, but mainly, I was nervous and quiet. I didn't really know what to expect physically or mentally. I won't go into too much detail, but the nurses and doctors at Assuta were extremely professional and kind (thank goodness). I got a lovely ventilated gown to wear during my stay, two stylish bracelets, and autographed several documents stating that I was aware of the risks and complications that could occur - standard run of the mill stuff, like a punctured uterus or retained placenta. I was nervous as hell and took prayers from whomever and wherever.
My first two births (my crazy boys) were drug-free but induced since I was on blood thinners and the doctors and midwives were nervous. In both the States and Israel, I took a half a cytotec pill orally and my body, apparently knowing what it was doing, simply took over. My third baby (Lil' Lilush) was all drug-free, no cytotec or anything. This fourth baby required a little more.
While sitting with the doctor discussing risks, he gave me FOUR cytotec pills, two to take sublingually (under my tongue) and two... elsewhere. I remember thinking it was overkill - what a terrible choice of words. But there's nothing "choice" about this "procedure." The most random thoughts go through your head when you're laying there, waiting for the pills to kick in, freezing, teeth chattering due to incoming wacky hormones and air conditioning, counting down the sixty minutes before they take you in.
And then they do.
They wheel you in through a set of double doors that requires one scanned card and then another. The doors in front of you don't open until the set behind you closes. I think, how odd it is that they have safari doors - what, they're afraid of crazed, pregnant women breaking out of the department, gowns flapping in the wind as they wave their hands in the air... Like I said, random thoughts.
My husband walks with me as far as he can go, grips my hand, tells me he loves me, and then I'm alone and it's freezing in the interior hallway. The hormones have jacked everything up and it feels like I've been here forever, but it's only been an hour since I took the pills. The kind nurse asks me again what my ID number is, and I crack and almost cry as I repeat it to her. It's too late to change my mind and I can't anyway - there's no point.
I'm asked to walk into the OR on my own accord and I do, chattering the whole way. The nurse gets me not one, but two heated blankets, one for beneath, one for above (it helps a little) and they prep me, give me a quick IV with antibiotics and an anesthetic and say, lilah tov.
...
And that's it. I wake up in recovery, empty. I sleep and sleep some more until they finally let my husband in. I sleep more and they wheel me back into my original room. I have to lay in bed for a total of two hours and ding them when I need to use the bathroom (kinda like after you give birth). So I lay there.
I don't remember what I spoke to my husband about except that I was hungry. We headed to Ra'anana and my in-laws suggested eating at this great place called Sara's Place. I wasn't really in the mood, but we went and I'm glad we did. With all my remaining energy, we ordered the best hamburgers and we talked. He mentioned that the nurse came in to the waiting area after my procedure and asked who was "Ariel haGibor (Ariel the hero)." Apparently while I was coming out of sedation, that's what I called him. We sat next to each other, we enjoyed our food, we shared photos of the kids, and we enjoyed each other's company thoroughly while trying to move forward from the hellish morning.
I don't really recall much after that. I hadn't realized that lunch took the entire week's energy. I'm pretty sure we went home and I rested. Slept and rested. Slept and rested. Played a bit with the kids as a pick-me-up and then rested more. Rested all of Thursday. On Friday we started studying for my first law exam. On Saturday, my oldest asked me when the baby was going to join us. On Sunday, I took my exam. Monday and Tuesday were "work" days, and Wednesday I studied again. Today (Thursday) was another exam which ended around 3:15pm and in three days, we will try and celebrate "Mama Chana" day (what would have been my mom's 79th birthday). Quite the month.
I haven't had much time to think about everything that happened over the last two weeks; all I've been doing is coughing, studying, and taking tests. Today, the last test for five months, has been the day I've been dreading - wondering if it would be as bad as the week after shiva ended. Truth be told, I'm in a foul mood, I'm sad, and I'm tired. Over the past week there were some days where I couldn't stop crying and there were some days when I was just... tired and disconnected. One guy at work kept asking what was wrong and I just didn't feel like sharing and voicing everything. See, writing is safe. Speaking is not.
It's getting harder and harder to write these articles. It's getting harder and harder to share how I'm feeling. It's getting harder and harder to think of the little baby and feel these things and I so badly just want to tuck them away. And sleep. A lot.
I don't really have a choice though. As a friend said, the sun comes up every morning whether you've coped with the day or not. I guess I'll just do my best, wipe my tears, play with my three little miracles and my husband the hero, and maybe, one day, my sun will come up, shine through the tears on my face and I'll get a rainbow.
Just not today. Maybe tomorrow.
That Day and the Emotional Aftermath.
On Wednesday the 14th (an inauspicious day in my family), my husband and I woke up too early (not really, I slept through the first alarm at 5:30am) and snuck out to drive to Assuta in Tel Aviv by 7am. No one was awake in our house, not my husband's brother, not the baby, not the boys. My sister-in-law had also slept over so she could get a ride into TLV, but she was very quiet as well. What was there really to say?
We drove in, throwing small talk occasionally at each other, but mainly, I was nervous and quiet. I didn't really know what to expect physically or mentally. I won't go into too much detail, but the nurses and doctors at Assuta were extremely professional and kind (thank goodness). I got a lovely ventilated gown to wear during my stay, two stylish bracelets, and autographed several documents stating that I was aware of the risks and complications that could occur - standard run of the mill stuff, like a punctured uterus or retained placenta. I was nervous as hell and took prayers from whomever and wherever.
My first two births (my crazy boys) were drug-free but induced since I was on blood thinners and the doctors and midwives were nervous. In both the States and Israel, I took a half a cytotec pill orally and my body, apparently knowing what it was doing, simply took over. My third baby (Lil' Lilush) was all drug-free, no cytotec or anything. This fourth baby required a little more.
While sitting with the doctor discussing risks, he gave me FOUR cytotec pills, two to take sublingually (under my tongue) and two... elsewhere. I remember thinking it was overkill - what a terrible choice of words. But there's nothing "choice" about this "procedure." The most random thoughts go through your head when you're laying there, waiting for the pills to kick in, freezing, teeth chattering due to incoming wacky hormones and air conditioning, counting down the sixty minutes before they take you in.
And then they do.
They wheel you in through a set of double doors that requires one scanned card and then another. The doors in front of you don't open until the set behind you closes. I think, how odd it is that they have safari doors - what, they're afraid of crazed, pregnant women breaking out of the department, gowns flapping in the wind as they wave their hands in the air... Like I said, random thoughts.
My husband walks with me as far as he can go, grips my hand, tells me he loves me, and then I'm alone and it's freezing in the interior hallway. The hormones have jacked everything up and it feels like I've been here forever, but it's only been an hour since I took the pills. The kind nurse asks me again what my ID number is, and I crack and almost cry as I repeat it to her. It's too late to change my mind and I can't anyway - there's no point.
I'm asked to walk into the OR on my own accord and I do, chattering the whole way. The nurse gets me not one, but two heated blankets, one for beneath, one for above (it helps a little) and they prep me, give me a quick IV with antibiotics and an anesthetic and say, lilah tov.
...
And that's it. I wake up in recovery, empty. I sleep and sleep some more until they finally let my husband in. I sleep more and they wheel me back into my original room. I have to lay in bed for a total of two hours and ding them when I need to use the bathroom (kinda like after you give birth). So I lay there.
I don't remember what I spoke to my husband about except that I was hungry. We headed to Ra'anana and my in-laws suggested eating at this great place called Sara's Place. I wasn't really in the mood, but we went and I'm glad we did. With all my remaining energy, we ordered the best hamburgers and we talked. He mentioned that the nurse came in to the waiting area after my procedure and asked who was "Ariel haGibor (Ariel the hero)." Apparently while I was coming out of sedation, that's what I called him. We sat next to each other, we enjoyed our food, we shared photos of the kids, and we enjoyed each other's company thoroughly while trying to move forward from the hellish morning.
I don't really recall much after that. I hadn't realized that lunch took the entire week's energy. I'm pretty sure we went home and I rested. Slept and rested. Slept and rested. Played a bit with the kids as a pick-me-up and then rested more. Rested all of Thursday. On Friday we started studying for my first law exam. On Saturday, my oldest asked me when the baby was going to join us. On Sunday, I took my exam. Monday and Tuesday were "work" days, and Wednesday I studied again. Today (Thursday) was another exam which ended around 3:15pm and in three days, we will try and celebrate "Mama Chana" day (what would have been my mom's 79th birthday). Quite the month.
I haven't had much time to think about everything that happened over the last two weeks; all I've been doing is coughing, studying, and taking tests. Today, the last test for five months, has been the day I've been dreading - wondering if it would be as bad as the week after shiva ended. Truth be told, I'm in a foul mood, I'm sad, and I'm tired. Over the past week there were some days where I couldn't stop crying and there were some days when I was just... tired and disconnected. One guy at work kept asking what was wrong and I just didn't feel like sharing and voicing everything. See, writing is safe. Speaking is not.
It's getting harder and harder to write these articles. It's getting harder and harder to share how I'm feeling. It's getting harder and harder to think of the little baby and feel these things and I so badly just want to tuck them away. And sleep. A lot.
I don't really have a choice though. As a friend said, the sun comes up every morning whether you've coped with the day or not. I guess I'll just do my best, wipe my tears, play with my three little miracles and my husband the hero, and maybe, one day, my sun will come up, shine through the tears on my face and I'll get a rainbow.
Just not today. Maybe tomorrow.
Tuesday, August 20, 2019
Perfect Soul, Imperfect Baby: Swirling Thoughts
Part V: Tuesday, August 13.
My Swirling Thoughts.
Each morning for the past week (yes, it's been a
week) I've struggled to get out of bed. In my everyday life since last August when I got re-diagnosed, I have suffered from
depression. To combat it, I take anti-depressants and until now, they have been a life-saver. I also happen to have a sleep disorder; for this, I take sleep
medication nightly (except for the nights before the days I think I'm going to
have a "procedure," which isn't really a procedure, but rather the termination
of a life that, apparently, wasn't meant to be).
This week, however, was a doozy and the depression really kicked it up a notch. My husband shared with me last week that he was concerned for me and my mental health.
Yea, nodding, I could see that, but I'll be okay. I'll write and write and
write some more. Maybe I'll paint. Maybe I'll do more photography. Maybe I'll vomit.
I go to work because why not, what else am I going to do. So I arrive and it appears, from the outside, that it's a regular morning at my
regular desk with the regular Mediterranean Sea outside my window.
From the inside, it's all turmoil. My thoughts center around this sad, broken little life still growing inside me. I just want to
get past this already (whatever "this" is), and I'm glad it will finally be tomorrow. At the
same time, I'm dreading it. Kinda like a funeral, I guess. You know you need to
attend and you know it's going to suck, but you also know you might, possibly, start to feel
some closure after it happens (or at least you hope so).
I draft and share my very first article about it, sharing my baby and my story with the world. Before this moment, very few people knew and, suddenly, everyone knows. The wall cracks and crumbles before me.
Everyone comments on my bravery; they message me privately; they leave messages of love and light to break through the darkness surrounding me; they send me WhatsApps.
Women from Michigan, Israel, other cities and countries come out of the woodwork to flood me with love and stories; women I know, women I don't know, women who publicly share their experiences, women who have never told anyone about their loss. I hear from other women who (and a husband whose wife) went through something similar.
They offer to chat, to
listen, to sit next to me, to attend the procedure with me. It's
incredible, a little intimidating, and very humbling. It makes me cry that (unfortunately) I am not
alone though my situation is slightly different than most, me with a still-alive baby.
Here's what's not fair about this, aside
from everything.
- I'm still nauseated.
- I still have cravings.
- I still take my folic acid and prenatal vitamins.
- I still am scared to drink alcohol even though it's completely and logically moot at this point.
- I feel guilty and relieved that I'll probably physically feel better after this is done.
Lunch is relatively "normal" and I find it surreal that this is my "new normal."
It's only
after lunch, as I start to think again, when I start to feel awful and queasy about the whole thing, even
though I know, intellectually, it's the right decision. And that's part of the problem.
Your brain says one thing and your heart wants something else.
The problem is that I was given way too
much time to think about this.
The problem is that this happened at all and I will likely never ever have an answer for any of it.
Hydrops fetalis happens. It's rare, but it happens. Only a tiny percentage of hydrops babies are miracle babies and mine, with its chromosomal abnormalities, defects in the umbilical cord, and possible and potential other bodily defects, is simply not one of them that had a chance.
In a warped way, this could have been worse. The baby could have been given a tiny chance on which I would have had to wager. And, in all likelihood, the baby would have died somewhere between twenty-two weeks and birth, if we were lucky. When all this started, I joined a hydrops support group and I cannot tell you how many pictures I have seen of parents tearfully saying 'goodbye' to their little babies. Ironically, each picture made me feel better about the choice we were making.
Why do I have to make
this awful decision and sit with it for almost a week before being able to follow through?
How
did this little fetus even get to this point of development... sheer stubbornness??
None of this is fair. Not even remotely.
Monday, August 19, 2019
Perfect Soul, Imperfect Baby: Protectzia
Part IV: Monday, August 12.
Protectzia
Instead of waking up at 6:00am and leaving the house within a half hour (sneaking out before the kids wake up) to head to Haifa, we play life as usual and pretend everything is normal. I put my eighteen month old on the back of my electric bike (teddy bear helmet, motzetz, and all) and take her to her Gan, her sucking on her pacifier the whole way, a smile on her face in the wind. Today, instead of accompanying me to my procedure that I should have been undergoing, my husband stays at home with two happy boys, waiting for a call from
Maccabi, waiting for the peace of mind we've been seeking for days.
For whatever reason, even though Ariel was the one on the phone with Maccabi all day, he didn't get the call that morning. Even though he was the one who spoke to nine different Maccabi representatives who each gave different information as to how long the process would take, when we'd receive the document, even how the process worked, he didn't get the call. Even though they promised to call him the moment it was approved and sent through, he didn't get the call.
He didn't get the call, but I did. I receive it by the time I'm on the train to work, late, at 9:00am, long
after the "procedure" was scheduled at Rambam in Haifa. I immediately let my husband
know he should call the hospital for an appointment the following day (Tuesday),
thinking it was no big deal. He calls them, then calls me back. "Are you ready
to be upset?," he asks. I hesitate, but nothing will surprise me at this point.
Apparently, they will no longer perform a D&E for me. No reason given. Perhaps it was because we were a "no-show" that morning, perhaps they didn't want to deal with Maccabi (I can't really blame them) - who knows. Either way, though they were more than willing to squeeze us in the last few days, it doesn't help us now.
Over the next several hours, we have no choice but to call different hospitals to see who, if any, will still perform a D&E at 14-15 weeks. My husband calls our amazing specialist (remember Dr. Drugan?) for a recommendation, then calls four different local hospitals. Some (Ichilov) don't bother answering, make him wait for forty-five minutes on hold before deigning to pick up the phone, and promise a call-back (which doesn't happen until after 5:00pm - and, by the by, they then inform us that they require their own, new, Committee hearing and finding).
Another, Asaf HaRofe, accepts our situation, Committee finding, and Tofes (apparently they perform D&Es until twenty-something weeks), but they have a two-week waiting list. Ariel tries to call Assuta next, but can't find the right number to the proper department. My husband then calls Tel HaShomer, who was actually great. They answered the phone within seven minutes, listened to our situation kindly and carefully, and promised a call-back (and DID SO within an impressive thirty minutes - though luckily, by that time, we had already solved our issue).
While my husband is busy with the phone glued to his ear, I'm spewing my heart out about this emotional and tiring situation with my office-mate, now friend. She mentions, casually but quite seriously, that her father works at Assuta in Tel Aviv and asks if I want her to call him on my behalf... Yes. Absolutely, I say.
See, I'm no dummy. Elbows and patience aside, I know how this country works ("protectzia") and I never ever say no to these offers (if you're smart, you won't either). She calls him for me, he gives her a specific name and phone number at Assuta, and I pass the information on to my husband. He calls them back.
Within twenty minutes
and just before high noon, I have a D&E scheduled at the beautiful (private) Assuta in Northern Tel
Aviv for two days from now at 7:00am.
My heart stops. I am thrilled, but extremely cautious.
My husband is too. He confirms with Assuta that they
will accept my Committee finding as well as the long-awaited Maccabi
Tofes 17 that I've finally received for the other hospital.
Not a problem, they
said, practically waving their Israeli hand over the phone, they are partnered with Maccabi and, for them, I never needed a Tofes in the first place. All I need is my little plastic Maccabi ID card and paperwork. That's all. We never needed one for them and not one of the nine Maccabi representatives ever mentioned that option.
And that's all. Just like that, it's scheduled.
I thank my office-mate profusely. She shrugs it off, no biggie. It was just a phone call,
she says (so Israeli).
I argue (so Israeli). Just a phone call for you, I
insist (and note in my head that I will forever bring her strawberry flavored taffy).
But just a little paranoid, my husband calls Maccabi again to
verify that the Tofes 17 will be accepted. Again, it is confirmed that it will be, but seriously, Assuta doesn't need it. We're good to go.
So... Wednesday, August 14th will be the big
day. Deep breath.
The end of a beginning.
Labels:
asaf harofe,
assuta,
baby,
chromosomal abnormality,
D&C,
D&E,
fetal hydrops,
hydrops awareness,
hydrops fetalis,
ichilov,
Maccabi,
malformed fetus,
pregnancy,
pregnancy loss,
tel hashomer,
termination of pregnancy
Friday, August 16, 2019
Perfect Soul, Imperfect Baby: The Absurdity
Part III: Sunday, August 11.
The Absurdity.
Today is Tisha B'Av - a national mourning (and fasting) day for Jews. As usual, we took our 18mo
old clever, gorgeous little girl to Gan for the day and left the boys with a
babysitter and my husband's sister, who came out special to help us.
We headed north
and arrived in Haifa just before 10am so they could squeeze us into their
schedule. I was 13w+5d and though we arrived on time, it didn't matter one whit
since Maccabi hadn't yet sent us the mandatory Tofes 17.
I had been fasting since midnight in
preparation for the surgery this morning but nothing doing. We found the proper floor, signed in and my
husband and I sat in the waiting area while we waited for this document that,
apparently, was never going to arrive. The nurses, with kindness in their eyes,
were ready to take me back in an instant, knowing what I was going to undergo.
We (that is, my Israeli husband) called Maccabi every
hour upon arrival and, right away they told us that, oh, we’ll mark it urgent for
us (never mind that they had already said that on Thursday afternoon –
remember that?) and it would arrive within the hour (but remember, we're
already at the hospital waiting).
We wait and call in another hour, oh,
they exclaimed, we'll mark it extra urgent and you'll get it in an hour!
I put my head on the table.
Still, nothing but disappointment. At this point, I'm still fasting, but now I'm
lightheaded and it's noon. At one point, the nurses rush me back to squeeze me
in but as we approach the back, they realize the document had not, in
fact, come in, and apologized profusely as they brought me back to the waiting
area. I got nothing but sympathetic faces.
It's now after noon and the hospital can
no longer fit us into their schedule. I’m emotionally and physically empty but for my uterus.
After giving us an appointment for the
very next morning (Monday) at 7:30am, Rambam Hospital sent us home, provided,
of course, we got the Tofes 17 in time. My husband continued to call Maccabi every
hour, including when they were closed to the public from 12-4p (cushy job), and
they kept promising that we'd get it. In response, my husband kept telling them he didn’t
believe a word they said. He kept calling and calling and told them, NO,
we already missed our appointment this morning, we have a new
appointment tomorrow at 7:30am, and we can't go if we don't have this document. Despite
all their promises, despite all our pleading, their office closed with no Tofes.
So what do we do, my husband asks me. I
shrug. I am emotionally spent. It's enough that I'm still growing a baby who won't
live. It's enough that I (we) must make this choice at all. It's enough that I have
to go through this “procedure.” Now we have to fight with my kupa about getting
it done, in time, so I don't have to be induced and give birth.
But big surprise…. Maccabi hadn't come
through and I have no energy whatsoever to go to Haifa again, much less
at 6:30am without a Tofes or any guarantee that the hospital can do the
procedure. Not to mention figuring out how to get the little one to Gan...
so we cancel my husband's brother for the next day and say we'll wait. I guess
we’ll just wait for the Tofes and I'll go to work.
I still don’t really feel like telling anyone
or talking to very many people, but I finally tell my good friend in Netanya
what's going on and, just like my other friends and family, she hurts for me.
She asks what she can do. Nothing, I said. There’s nothing you can do. But she
doesn't listen. Instead, she sets up a meal train for me starting on Tuesday. People
will bring over food for my family and me so I don't have to worry so much
about recovering and moving around. She surprises me with a bottle of wine and
my favorite snack: salty pretzels and Duncan Hines cream cheese frosting. I actually smile, hug her
tight, hurry inside to put my kids to bed, break the fast, and eat my beloved
pretzels and frosting in the living room.
It's now evening on the day this was supposed to happen and it’s finally quiet in our
apartment. My husband and I sit next to each other in quiet. He watches a show
on Netflix. I watch a different show. I think, "I still have a baby."
We turn off our shows and study for my law exams
that are scheduled for next week.
We go to sleep.
-->
Labels:
D&C,
fasting,
fetal hydrops,
friends,
Haifa,
hydrops awareness,
hydrops fetalis,
Maccabi,
malformed fetus,
pregnancy,
pregnant,
Rambam Hospital,
statistic,
termination,
termination of pregnancy,
tisha b'av,
Tofes 17
Thursday, August 15, 2019
Perfect Soul, Imperfect Baby: The Confirmation
Part II: Thursday, August 8
Early this morning, without an appointment and under advisement from our ultrasound doctor, we slipped into Dr. Feldman's office (our ob/gyn) to get a consult with him about the results. He's a very reasonable fellow, knowledgeable, speaks English, has a good bedside manner, and very clearly cares about his patients. Out of all the gynecologists in this country, he's my favorite. My husband and I sat down, not expecting good news, and, sadly, he obliged.
He looked at the ultrasounds, paperwork, and detailed information and was extremely apologetic. When a doctor looks at things, what you want is "unremarkable." That's not what we got.
He gently gave us advice and choices, sad smiles, and told us that it was likely serious chromosomal defects in the fetus, who would likely not survive even until birth. Quietly, he suggested we should terminate. I already knew the answer, but I asked quietly if it were fixable - maybe I had made a mistake, maybe I had misunderstood the research I had done, but he shook his head and said, no. I started crying again.
Dr. Feldman said what we could do is get additional information by calling his friend, Dr. Drugan (a genetic specialist) at Hillel Yaffe Hospital in Hadera. Honestly, he said, we could just drive up there and see if he'd see us in person since it's only about 25m away.
The Confirmation.
He looked at the ultrasounds, paperwork, and detailed information and was extremely apologetic. When a doctor looks at things, what you want is "unremarkable." That's not what we got.
He gently gave us advice and choices, sad smiles, and told us that it was likely serious chromosomal defects in the fetus, who would likely not survive even until birth. Quietly, he suggested we should terminate. I already knew the answer, but I asked quietly if it were fixable - maybe I had made a mistake, maybe I had misunderstood the research I had done, but he shook his head and said, no. I started crying again.
Dr. Feldman said what we could do is get additional information by calling his friend, Dr. Drugan (a genetic specialist) at Hillel Yaffe Hospital in Hadera. Honestly, he said, we could just drive up there and see if he'd see us in person since it's only about 25m away.
My husband and I looked at each other and immediately drove to Hadera. Parking was a little difficult with all he construction, but then we walked into the beautiful hospital that had huge (fake) birds flying in the expansive foyer. We wandered around until we found Dr. Drugan, and, surprisingly, he accepted us for a quick consult - again without an appointment - when we told him it was urgent.
He sat us down, looked at the information, and shook his head. He gave us the same information as the other two doctors, that not only was it likely that the fetus wouldn't survive to birth, but also that I could miscarry at any time (which may explain my constant cramping). The specialist told us we had two choices: we could either end the pregnancy immediately with a D&E or we could get a CVS/amnio to see the reason for the chromosomal defects (and then get a D&E). We did have to keep in mind that test results could take up to a week, even expedited, which could then affect what type of procedure I might have to undergo.
He sat us down, looked at the information, and shook his head. He gave us the same information as the other two doctors, that not only was it likely that the fetus wouldn't survive to birth, but also that I could miscarry at any time (which may explain my constant cramping). The specialist told us we had two choices: we could either end the pregnancy immediately with a D&E or we could get a CVS/amnio to see the reason for the chromosomal defects (and then get a D&E). We did have to keep in mind that test results could take up to a week, even expedited, which could then affect what type of procedure I might have to undergo.
Dr. Drugan mentioned this specifically because his hospital, Hillel Yaffe, conducted D&Cs only until thirteen weeks. Rambam Hospital in Haifa performed them until fifteen weeks, but either way, I was past the 13 week mark so I had to decide quickly if I didn't want to be induced and take two days to give birth to my malformed baby.
I couldn't decide about the CVS sitting right there, but the doctor gave us time. My husband and I used it to eat lunch, our first meal of the day since we had been running around. We decided, after great deliberation and reviewing the fact that additional information would not help with future pregnancies, that it'd be best to handle everything sooner rather than later. It was likely just a fluke at my age. We returned to Dr. Drugan, again without an appointment, and told him that we'd like to go ahead with the D&C.
He immediately took his cell phone out and called his contact at Rambam Hospital, scheduling the procedure for Sunday morning at 10am (they were basically squeezing us in). He also scheduled us to be heard, that very afternoon, by the Committee who grants terminations of pregnancy (he is on the Committee). We ran home, helped our babysitter with clothing and lunch (we had just moved the previous week and she couldn't find clothing) and returned to Hadera in time to be "judged." We filled out paperwork in a broken down little building (I think the Hospital was rebuilding every other building first), met with a highly sympathetic social worker and a very understanding Committee (who must have at least three people: a social worker, a secretary, a genetic specialist, and an internal doctor). Without hesitation, they approved our termination and literally wished us love and good luck in the future.
I couldn't decide about the CVS sitting right there, but the doctor gave us time. My husband and I used it to eat lunch, our first meal of the day since we had been running around. We decided, after great deliberation and reviewing the fact that additional information would not help with future pregnancies, that it'd be best to handle everything sooner rather than later. It was likely just a fluke at my age. We returned to Dr. Drugan, again without an appointment, and told him that we'd like to go ahead with the D&C.
He immediately took his cell phone out and called his contact at Rambam Hospital, scheduling the procedure for Sunday morning at 10am (they were basically squeezing us in). He also scheduled us to be heard, that very afternoon, by the Committee who grants terminations of pregnancy (he is on the Committee). We ran home, helped our babysitter with clothing and lunch (we had just moved the previous week and she couldn't find clothing) and returned to Hadera in time to be "judged." We filled out paperwork in a broken down little building (I think the Hospital was rebuilding every other building first), met with a highly sympathetic social worker and a very understanding Committee (who must have at least three people: a social worker, a secretary, a genetic specialist, and an internal doctor). Without hesitation, they approved our termination and literally wished us love and good luck in the future.
That's when the trouble began.
Immediately (remember this detail for later) upon leaving the hospital to head back home, we called Maccabi (our health kupa whom we usually love) and told them we need a Tofes 17 – a document that shows the kupa the procedure has been approved and it shows the hospital that the cost of the procedure will be covered, in this case, a procedure that costs over 4,000 shekel. We informed the kupa the urgency of it and that we would need it by Sunday. They claimed they marked it urgent and we would have it in time, an important fact since the hospital would not go ahead with the procedure without it.
This day had been filled with running around, meeting with doctors, paperwork, and appointments. It was all mental and logical. But the weekend.... the weekend was all emotional.
This day had been filled with running around, meeting with doctors, paperwork, and appointments. It was all mental and logical. But the weekend.... the weekend was all emotional.
All weekend I prepared myself mentally for Sunday morning. On Friday, I spent time with my three kids. On Friday night, I asked my husband to give one last blessing to the baby (and cried through the whole thing). On Saturday, I didn't want to talk to anyone and slept late, and on Saturday night, I rubbed my belly, felt my uterus while lying down, and told the baby it was loved and that I was sorry.
And while I slept, I dreamt of my baby.
-->
And while I slept, I dreamt of my baby.
Subscribe to:
Posts (Atom)